Just Rox

Archive for the ‘Crohn’s Disease’ Category

At this very moment my boss is at a conference discussing funding for innovative health care. One stumbling block to medical research is faith-based interference with stem cell research. Sick people shouldn’t be denied treatment because some people are afraid of supernatural consequences, and find ever more creative ways to convince ignorant but well-meaning people that magic belongs on equal footing with science.

Al Stefanelli writes about the  not-so-subtle changes in the Intelligent Design website in “You Can’t Polish a Turd”.

IBD: Icky Bowel Diagram

While having a painful attack due to simple friggin’ digestion, I posted a status update & comments on Facebook… because distractions help sometimes. A few friends expressed concern, because “sweating, fetal and nearly puking from the pain” is usually something to worry about. Eh, not so much when you’re living with Crohn’s Disease. This is my response, with a bit of linkage added.

Thanks, all! Support http://ccfa.org – life sucks with a bad gut!

Not to worry, though. Thankfully, I’ve been in remission for 11 years now, so I manage Crohn’s, as opposed to having to treat it. Hence the list of “gut-killers” on which Zankou chicken has now been placed, hah. There’s another list: “Worth suffering for.” Good clam chowder is on that list!

One friend commented, “Go to the doctor!”

Well, It’s Catt’s turn this year to get health care. Once she’s set up, I’ll get my own ass in there. I’m actually pretty good at knowing what needs attending to and what’s just one of those “I ate something I shouldn’t have, it’ll pass” type things. I can grit my teeth through a lot of pain. I will win!

Another friend asked what I’d eaten.

All I ate was a chicken leg & thigh, hummus & a few pieces of chopped tomato on pita. Zankou uses a lot of garlic in their cooking already, and I made the mistake of adding their delicious garlic spread, too. I think THAT was the clincher.

Waaaah! I’m Sicilian and garlic makes my guts go gak – UNFAIR! Ah well, at least spicy stuff doesn’t seem to bother me. I can still have my favorite cure-all: Pho!

Weird & disturbing: Ever since I had my first surgery, I can literally feel the workings & goings-on of most of my intestines. It nearly drove me out of my mind at first. It’s creepy to be so aware of digestive processes! The sensation depends on the day, and can be anything from mildly annoying to something worth taking a painkiller for (btw, that’s enough to make me at least CALL a doc, if it’s still up there in 8-9 range after a day or so of being “good” so I don’t make it worse). I can go days on clear liquids if I really have to, or I’ll eat rice & coconut milk.

Really, though, I’m very fortunate that mine is as manageable as it is. My heart bleeds for some of the people I know from the IBD groups, especially kids, who have it so much worse than I do already. On the bright side, there’s been success with stem cell therapy in Crohn’s… may Science win the day!!!